Health Update #4: Recovery is a %*#*&$@!In October 2017, at the Q&A following the London theatrical premiere of Unrest, a woman stood up and asked, “Why aren’t you talking about…Feb 24, 2020A response icon15Feb 24, 2020A response icon15
New study on “craniocervical obstruction” and MELarge study of ME patients finds high rates of hypermobility, fibromyalgia, signs of intracranial hypertension and ChiariNov 29, 2019A response icon13Nov 29, 2019A response icon13
How infection can damage the cervical spineHow could post-infectious ME result from pathologies like CCI or cervical stenosis? There are precedents. Here are three examples from…Nov 9, 2019A response icon10Nov 9, 2019A response icon10
Pathology: Part II (Could PEM be a symptom of neural strain?)How I think brainstem compression and tension on my spinal cord caused my symptoms of post-exertional malaiseSep 4, 2019A response icon9Sep 4, 2019A response icon9
Pathology: Part I (A walk around my brainstem)How craniocervical instability and brainstem compression might have caused my ME symptomsSep 3, 2019A response icon5Sep 3, 2019A response icon5
Onset: Part III (Connections)Why patients with ME might have collagen breakdown, from many causes.Jul 10, 2019A response icon10Jul 10, 2019A response icon10
Whitney’s playlistA few weeks ago, I had the chance to visit Whitney again. This time, he was going to the hospital to have his jejunostomy tube (“J-Tube”)…Jul 8, 2019A response icon23Jul 8, 2019A response icon23
Onset: Part II (Mold damage)A virus triggered the onset of ME but it was a mold exposure three years earlier that set the stage.Jun 30, 2019A response icon6Jun 30, 2019A response icon6
Onset: Part I (Viral onset)It started with a high fever. Of that much I am sure. Like 80% of people with Myalgic Encephalomyelitis (ME), I can remember an infection…Jun 23, 2019A response icon8Jun 23, 2019A response icon8
Stanford researchers looking for ME/CFS patients with CCIThe Stanford Chronic Fatigue Syndrome Research Center would love the participation of patients with diagnoses of both Myalgic…Jun 19, 2019A response icon3Jun 19, 2019A response icon3
