Stanford researchers looking for ME/CFS patients with CCI

Jennifer Brea
1 min readJun 19, 2019

The Stanford Chronic Fatigue Syndrome Research Center would love the participation of patients with diagnoses of both Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Craniocervical Instability (CCI) in an ongoing ME/CFS research study.

They are looking for patients who:

  • Have been diagnosed with ME/CFS
  • Have been diagnosed with craniocervical instability (CCI)
  • Are pre-surgery, post-surgery, or not planning to have surgery

The aim is to compare how ME/CFS patients with CCI are similar to or differ from other ME/CFS patients and healthy controls, and to measure changes (if any) in patients pre — and post — surgery.

If you are interested in participating, email Anna Okumu at aokumu@stanford.edu. Please put “CCI” in the subject line.

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Jennifer Brea

Maker of @unrestfilm. Plotter of revolution @MEActNet. Wife of @owasow. http://jenniferbrea.com